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ALS Ice Bucket Challenge Progress

 

Support Groundbreaking ALS Research.

We are very close to viable treatments options for ALS. Your support has made these advances possible.

Since the Ice Bucket Challenge, our chapter has donated $800,000+ to research. The ALS Association has also awarded 300 research grants to 200 scientists. There have been 33 new drug trials, 29 new obervational trials, and 5 new genes discovered.

We challenge you to continue the fight. Help our chapter fund $150,000 in research this year.

 

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Research in Our Community

 

ENews Aug 2019 Photo_3

 

John Schaffers, who lives in Vancouver, Washington, is from a large family. He grew up the only boy with eight sisters. 

Now, John has watched his father and two of his sisters die from ALS. Then, in September 2018, he received the dreaded news that he also had ALS. 

John has familial ALS. About 10% of ALS cases are familial ALS, an inherited form of ALS that usually affects multiple family members. 

John was able to get into a phase one clinical trial for a designer DNA drug in early April 2019. Designer DNA drugs target genes within the nervous system and effectively silence them. It is one of the most exciting frontiers for ALS treatments. 

John says that he is already starting to notice changes. 

“My joint pain and leg cramps are gone. I have regained my sense of balance and can now raise my right foot from the ankle. It is easier for me to roll over in bed, dress, talk, and walk.” 

John is an avid cyclist who has ridden across the United States and was on the founding committee of the Oregon Ride to Defeat ALS. 

He does not want his cycling days to be a thing of the past. 

“I’m going to get on my bike again!” said John. 

Advances in ALS treatments would not be possible without you. Your support gives John and many others hope for the future. 

You helped fund John’s clinical trial. The ALS Association was the original funder of designer DNA drugs and we have continued to fund it throughout its development. 

Your support could help fund the next big breakthrough in ALS research. 

 

Research Updates

Designer DNA Drugs

Designer DNA drugs target genes within the nervous system and effectively silence them. It is one of the most exciting frontiers for ALS treatments.


Gene Identification

Understanding disease pathways is essential to the development of therapeutics and eventually a cure.

 

T-Cell Therapy

Researchers have been studying the T-cells of people living with ALS. Preliminary studies suggest that T-cell expansion and infusion could slow ALS progression.


Collaboration

Increased collaboration has led to breakthrough discoveries.