2019 Ride to Defeat ALS - OR & SW Washington

Joy in the Moment
Joy in the Moment

Team Gratitude

Thank you for helping our team reach our Ride to Defeat ALS fundraising goal! As you probably know Ron was diagnosed with ALS in May of 2017.  With that added on top of a 2007 diagnosis of MS and the loss of employment immediately after the ALS diagnosis, the future seemed pretty bleak.  The truth is that the ALS diagnosis drove me to discover how to live again, fully present in the moment - such a tremendous gift!  I was fortunate to have so many loving, supportive and compassionate people around me.  It has allowed me to develop a strong daily mindfulness meditation practice, a daily yoga practice and just plain learn to live a much healthier and happier lifestyle.  Now, inexplicapably on 5/8/2019 when my neurologist repeated the EMG and other tests, he could see no more indications of ALS!!!!  Nothing is ever certain, and nothing remains the same.  Could I still have it?  Could I have possibly done the impossible and beat it?  Who knows.  What I know is that during the last two years I've grown tremendously, gained so many friends and learned the absolutely devastating impact this disease can have on so many lives.  I'm now a permanent part of the ALS community and want to dedicate a part of my future life, however long that may be, to helping others struggling with this terrible disease.  SO....  Gail and I decided to push ourselves to find ways to help and the Ride To Defeat ALS is our starting point.  We hope you can help by pledging any financial support you are comfortable with, and if that isn't possible just knowing you will be thinking about us and supporting us with your thoughts and prayers woudl be fantastic.

This is an exciting opportunity for us to work together to support those affected by Lou Gehrig's Disease and to spread awareness of the urgency to find treatments and a cure.

Please consider joining us as we hit the pavement around Mt. Angel, Oregon on July 14th, and/or donating to a team member listed below.

With your help, we will be able to make a difference in the lives of people affected by this disease and their families. 

We encourage you to share this with your friends, family, neighbors and coworkers! We would love their help!

Why We Need Your Help

Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs a person of their ability to walk, speak, swallow and eventually breathe. The life expectancy of a person with ALS averages only 2 to 5 years from the time of diagnosis. In a very short period of time, the person and their family need a myriad of services and support The ALS Association is their one-stop-shop. 

Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries. This crippling disease can strike anyone. 

The ALS Association Oregon and SW Washington Chapter supports families living with ALS at each and every stage of the disease. Through local monthly support groups, medical equipment loan closets, caregiver support, partnerships with multi-disciplinary clinics, and so much more - services are provided at no cost to the person with ALS and their family. The local chapter receives no government or insurance funding, but is supported through events like the Ride to Defeat ALS.

Help create change in the ALS community. Support our efforts by donating to a team member or joining our team today!

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