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Chadwick Family Raising Funds for ALS


Personal Fundraising Goal: $68,000.00

Total Number of Gifts: 297
Total Value of Gifts: $65,738.38

Recent Donors

C Fradkin

Laurie chadwick

Anonymous

Anonymous

Anonymous

Anonymous

Friends of Bed and Biscuits

Ms. Winslow

rustyzipper customer

Anonymous

Full Donor List Opens new window.Full Donor List

The mission of The ALS Association is to lead the fight to cure and treat ALS through global, cutting-edge research, and to empower people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.

I want to see my kids graduate from highschool.

** UPDATE **

As of May 7th 2010 you have helped me raise over $60,000 to fight ALS and provide critical services for people like me with ALS.

Please help me reach my goal of bringing that total to $68,000 this month to offset the cost of sending my friends Harper and Amie, and others to Washington DC to advocate for funding for ALS research (need to raise $8,000).
** **

My story:

I was diagnosed with ALS in September of 2007 at age 36. At the time, my daughter Korina was 6 years old, and my son Kyle was 4.

ALS results in gradual total paralysis and death via respiratory failure.

I hope more than anything to see both of my children graduate from highschool, but I know this is unlikely without major advances in ALS Research & treatment.

50% of those with ALS live fewer than 3 years after diagnosis.

20% live more than 5 years.

10% live more than 10 years.

Each year, more people in the US now die of ALS than AIDS.


ALS ASSOCIATION FUNDS KEY RESEARCH
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Over the last decade, the ALS Association has committed over $48,000,000 to Research.

Currently, ALS Association-funded scientists are looking into 15 different research areas relevant to ALS.


ALS ASSOCIATION MAKES PUBLIC POLICY CHANGES HAPPEN
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The ALS Association was key in bringing about fundamental changes to the way Medicare Benefits are delivered to those with ALS. If I had been diagnosed with ALS just a few years ago, I would have had to wait at least two years before receiving Medicare coverage.

In 2000, the President signed into law The ALS Treatment and Assistance Act (HR 353), legislation waiving the two-year Medicare waiting period for SSDI-eligible individuals with ALS.


ALS ASSOCIATION PROVIDES CRUCIAL PATIENT SERVICES
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Each month, the National and State ALS Associations serves thousands of families, including my own. The ALS Association has helped me to obtain equipment, navigate complex social security and medicare issues, and connect with others affected by ALS.

I want to see my kids graduate from highschool.

Help me and many others with ALS live to see their personal goals realized.

Please help me raise $100,000 in the next year to support the ALS Association's critical research, advocacy and patient services.

In addition to research and advocacy, your donation to the Oregon ALS Association will provide services to ALS Patients in Oregon.

Thank you! - Rob

Guest Book

If you would like, you can add your name and a short message to my Guest Book. Thank you.

Sign the Guest Book

Anita Iskenderian
Fri, Jun 22, 2012
The story is very compelling and I wish you all well. I have bought many items from the website. Both the selection and prices are very good and am pleased to be a customer.

Emily Kachulis
Mon, Jan 04, 2010
Dear Rob and family,
I was just poking around on the internet tonight and found your website. First I wanted to write and tell you how your Ugly 80-s Christmas sweaters are commonplace here in Iowa!
Then I saw ALS. My father died in June at age 64 from ALS. His father also had died from ALS. It seems it is genetic in our family, which is pretty rare, about 10-15% of the cases. Now however all of his children have a 50% chance of having that gene, and if we do our children have a 50% chance.
I just want to let you know that my heart goes out to you all and that you are in my prayers. With you we will continue to spread awareness of a disease that sadly is on the rise..

Jocelyn Wagner
Mon, Nov 09, 2009
I met Rob, Jen and their two lovely children quite by coincidence. They are wonderful people and lead interesting lives in the midst of their heroic struggle. Here's making a wish that their wishes come to fruition!

Karen Ellis (West)
Tue, Aug 26, 2008
I came onto the website looking for a kingly robe and perhaps a kings crown for my husband as we attend a Name Celebration Party in September and saw on the website the information on Rob's medical condition.
I am in shock. I am devastated that nobody let me know. You are like family to me and always will be no matter what. You saved MY life in many ways at the time we met and worked together years ago.
I am so sorry, so grievous for what you are feeling inside and the struggles that you are having to endure. I can only imagine that it puts life into a certain perspective even more than ever!
You are a strong family, a loving bond. And Rob you are a fighter both mentally, emotionally as well as physically. We will stand with you in prayer, love and in any way we can to support you.
Let me share with Bill what is going on and see what we can donate as well to this cause that needs great and immediate attention!
I am so sorry. We love you. I love you. I will check in periodically hoping to hear updates.
My love to you all,
Karen

Nicole M. Buerosse
Thu, Jun 12, 2008
Dear Chadwick Family,
I Wanted to extend my prayers and hopes for your health. I have purchased many items from you that I absolutely love!!! I wanted to thank you for all the wonderful items that you offer. And to say that your family will be in my prayers and thoughts. Also have you considered nutrition as a possible means to help fight this disease. I know it has greatly helped my Mother who was diagnosed with Parkinson's last year, she has at least held of the symptons a bit longer than most. Well just a thought, Blessings to you!
Sincerely,
Nicole M. Buerosse

Judy
Thu, Jun 12, 2008
Hi Jen I read your email and am so sorry to read that your husband has this:( You don't know me because I've never ordered anything from you before but Now I plan too in the future near 1 hopefuly. I just actually we all hope and pray for a miracle for you all.

Leticia Molina-Rolig
Sun, Jun 08, 2008
Father God Thank You Lord that you are there for us Father when there is no other place to go. Thank you for the healing hands that you place on our hearts to come together in a time of need Father. I ask of you to bless Rob his wife their beautiful children give them the peace that surpasses all understanding. We thank you Father for your strength....In Jesus Name Amen

Debi Nutcher
Sat, Jun 07, 2008
Rob:
My thoughts and prayers are with you and your precious family. I LOVE your mom and know she is helping to keep you strong. Best wishes.

Tricia @ Mentor
Mon, Jun 02, 2008
Hi Rob,
I don't know you, I work at Mentor and saw your friend Brian Derrick's email, but I did read Tuesdays with Morrie by Mitch Albom and I cried when I saw the picture of you with your beautiful family. I will keep you in my prayers.
All the best,
Tricia

Friends from Mentor CDC
Fri, May 23, 2008
Rob, Jennifer, Korina, Kyle-
We have been very lucky to get to spend time with your family over the past couple of years. Watching the way you interact has inspired us all, you can't help but see how much you all mean to each other.
We hope that through this donation we can support your goal.
Cindi Harris (and mom), Tiffany Wallace Anderson, Sara Matthews, Jessica Kunkleman, Sarah Walden (and mom), Shakti Srivastava, Jim Quest

Nancy & Terry Eaton
Sun, May 18, 2008
Hey Robby. A big hug from us and Ya Ya. If Patty were here, she'd be on your team, too. We're praying. Love,
Terry, Nancy and Ya.

kayrene kelley
Fri, May 16, 2008
I am so touched-I cannot work right now. I had to wait to read this when I could have some time to digest everything you are saying.
WE are so lucky to have met you and your family. Your Madre is the coolest woman and so fun to have around Silverton. Thank you for letting us have an opportunity to support everyone suffering with ALS. You are a strong beautiful person. We worship your strength!
The Girls from Stomp!
Kayrene Julie and Nicole

Harmina Mansur ( Turk - Bamford )
Thu, May 08, 2008
Hi Rob,
I got your email yesterday and I don't really know what to say right now.
I've been a supporter of the ALS Association here is CA for a few years already. I'll be making a donation for sure. I hope you don't mind, but I forwarded your email to a bunch of my friends and family to help drum up some support.
I'll email again soon.
Love,
Harmina

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