As you probably know, in December of 2007, a neurologist in Maine told us that he thought Eric had ALS. His diagnosis was confirmed by an ALS expert at the ALS Clinic at Massachusetts General Hospital in Boston. The disease came on very slowly at first but then ramped up. Eric survived 3 years, 2 months and ten days from diagnosis.
This disease, though made famous by Lou Gehrig 70 years ago, has been known for 150 years. To date, the cause is unknown and there is no meaningful treatment. One of the great efforts currently being made by medical experts and other caregivers, is caring for the patient through the progression of the disease. This involves physical effort by caregivers and continually improving and expensive technical equipment. In addition to funding research, the ALS Association provides equipment and helps caregivers.
When it comes to funds, ALS is an orphan disease. So many more people have things like heart disease and cancer that of course research dollars go there. The fact that there are fewer patients with ALS does not change the misery and heartache of the disease. After 150 years, it is time for discovering the cause and developing a cure.
Thank you for helping me reach my Walk to Defeat ALS(TM) fundraising goal! This is an exciting opportunity for us to work together to support those affected by Lou Gehrig's Disease and to spread awareness of the urgency to find treatments and a cure.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease. I encourage you get your friends, family, neighbors and coworkers involved!
In loving memory of our dear sweet ERIC!!!!!!!