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Where Does the Money Go?

Everything we do advances the search for effective treatments and a cure for ALS. We implement an integrated, multidisciplinary system of care services, public policy, advocacy and research funding. The ALS Association is the only organization touching every area in a systematic way that is needed to defeat this unjust disease. Events like the Ride to Defeat ALS supports the following:

  • 126 active research projects across the globe in 13 scientific focus areas
  • 9 global strategic initiatives and 55 actively recruiting ALS clinical trials
  • $89+ million dedicated to research since the ALS Ice Bucket Challenge to advance treatments and a cure
  • 2 drugs available on the market with 2 potential new antisense drugs and numerous other drugs on the horizon aimed to slow or stop progression. 
  • On-staff Care Services Coordinators who offer individual support and home visits to assess needs, suggest equipment, connect with local resources and help families plan.
  • ALS Association Certified Center of Excellence partnerships with Providence Brain & Spine Institute and the Portland VA Health System.
  • ALS Association Clinic partnerships with OHSU, Kaiser Permanente, St. Charles Health System, The Center and Asante Health System.
  • Medical Equipment Program in partnership with Numotion and Norco Medical to loan equipment to aid in daily living activities and with mobility.
  • Augmentative Communication and Assistive Technology Program to support communication, access and technology needs.
  • Chapter Grant Program that funds a myriad of reimbursable, ALS-related expenses such as respite care, counseling, co-pays for healthcare costs, home modifications, and more.
  • Caregiver Support Program to provide family caregiver focused support groups, Care Connections guidance, and referrals.
  • Monthly Support Group Program for people living with ALS, family members, and friends.
  • Support and resources for children, in partnership with The Dougy Center, who have ALS in their families.
  • Bereavement Support Program for family members and friends who have lost a loved one to ALS.
  • Education and Outreach to health care professionals, home health care agencies and the community with updates on current ALS needs and solutions.

Our chapter does not receive any government or insurance funding.

budget expense ratio 2016-17

(this pie graph is based off our chapter's 990 for 2016-17.)