Where Does the Money Go?
Everything we do advances the search for effective treatments and a cure for ALS. We implement an integrated, multidisciplinary system of care services, public policy, advocacy and research funding. The ALS Association is the only organization touching every area in a systematic way that is needed to defeat this unjust disease. Events like the Ski to Defeat ALS supports the following:
- 126 active research projects across the globe in 13 scientific focus areas
- 9 global strategic initiatives and 55 actively recruiting ALS clinical trials
- $89+ million dedicated to research since the ALS Ice Bucket Challenge to advance treatments and a cure
- 2 drugs available on the market with 2 potential new antisense drugs and numerous other drugs on the horizon aimed to slow or stop progression.
Care Services Coordinators who offer individual support and home
visits to assess needs, suggest equipment, connect with local resources
and help families plan.
- ALS Association Certified
Center of Excellence partnerships with Providence Brain & Spine
Institute and the Portland VA Health System.
- ALS Association Clinic
partnerships with OHSU, Kaiser Permanente, St. Charles Health System, The
Center and Asante Health System.
Equipment Program in partnership with Numotion and Norco Medical to loan
equipment to aid in daily living activities and with mobility.
Communication and Assistive Technology Program to support
communication, access and technology needs.
Grant Program that funds a myriad of reimbursable, ALS-related expenses
such as respite care, counseling, co-pays for healthcare costs, home
modifications, and more.
Support Program to provide family caregiver focused support groups,
Care Connections guidance, and referrals.
Support Group Program for people living with ALS, family members, and
and resources for children, in partnership with The Dougy Center, who
have ALS in their families.
Support Program for family members and friends who have lost a loved
one to ALS.
and Outreach to health care professionals, home health care agencies
and the community with updates on current ALS needs and solutions.
Our chapter does not
receive any government or insurance funding.
(this pie graph is based off our chapter's 990 for 2016-17.)