About Our Chapter
Since its inception
in 2002, our local chapter of The ALS Association is the central source for
services and education for people with ALS, their families, caregivers, and
health care professionals in all of Oregon and the six counties of SW
Washington. The progression of ALS varies significantly from one person to
another. Responding to each person’s individual needs, our local chapter is
available to provide vital services and reliable information through strategic
A sampling of programs and services available, free of
- On-staff Care Services
Coordinators who offer individual support and home visits to assess
needs, suggest equipment, connect with local resources and help families
- ALS Association Certified Center of Excellence partnerships
with Providence Brain & Spine Institute and the Portland VA
- ALS Association Clinic partnerships with OHSU, Kaiser
Permanente, St. Charles Health System, The Center and Asante Health
- Medical Equipment
Program in partnership with Numotion and Norco Medical to loan
equipment to aid in daily living activities and with mobility.
Communication and Assistive Technology Program to support
communication, access and technology needs.
- Chapter Grant Program
that funds a myriad of reimbursable, ALS-related expenses such as respite
care, counseling, co-pays for healthcare costs, home modifications, and
- Caregiver Support
Program to provide family caregiver focused support groups, Care
Connections guidance, and referrals.
- Monthly Support Group
Program for people living with ALS, family members, and friends.
- Support and resources
for children, in partnership with The Dougy Center, who have ALS in
Support Program for family members and friends who have lost a loved
one to ALS.
- Education and
Outreach to health care professionals, home health care agencies and
the community with updates on current ALS needs and solutions.
Our chapter receives no government or insurance funding - we rely solely on our events, corporate and personal gifts, and local foundation grants.
Before incorporating as The ALS Association Oregon and SW Washington Chapter, our organization was preceded by The Burdell Memorial ALS Foundation. The Foundation was formed to remember Richard Burdell, a Portland jazz and pop musician who died June 21 1998 after a 14-year struggle with ALS. Richard's sister, Cindy Burdell, is our Founder and now resides in Seattle, Washington close to family and friends.