Local Care Services for Oregon and SW Washington
Since its inception
in 2002, our local chapter of The ALS Association is the central source for services
and education for people with ALS, their families, caregivers, and health care
professionals in all of Oregon and the six counties of SW Washington. The
progression of ALS varies significantly from one person to another. Responding
to each person’s individual needs, our local chapter is available to provide
vital services and reliable information through strategic community
A sampling of services provided free of charge:
- On-staff Care Services
Coordinators who offer individual support and home visits to assess
needs, suggest equipment, connect with local resources and help families
- ALS Association Certified Center of Excellence partnerships
with Providence Brain & Spine Institute and the Portland VA
- ALS Association Clinic partnerships with OHSU, Kaiser
Permanente, St. Charles Health System, The Center and Asante Health
- Medical Equipment
Program in partnership with Numotion and Norco Medical to loan
equipment to aid in daily living activities and with mobility.
Communication and Assistive Technology Program to support
communication, access and technology needs.
- Chapter Grant Program
that funds a myriad of reimbursable, ALS-related expenses such as respite
care, counseling, co-pays for healthcare costs, home modifications, and
- Caregiver Support
Program to provide family caregiver focused support groups, Care
Connections guidance, and referrals.
- Monthly Support Group
Program for people living with ALS, family members, and friends.
- Support and resources
for children, in partnership with The Dougy Center, who have ALS in
Support Program for family members and friends who have lost a loved
one to ALS.
- Education and
Outreach to health care professionals, home health care agencies and
the community with updates on current ALS needs and solutions.
The information provided on this website is only a small fraction of the resources, ideas, and support that we can offer and make available to you.
For all people living with ALS in Oregon and SW Washington, we hope that you contact us directly so that we can marshal our resources to support you as an individual. There is a strong community of people who care about those affected by ALS, are passionate about providing support and funding research, and want to offer help and hope.
You are not alone.
We are here to help. Please contact us.
Care Services Director
Cassy Adams, MSW, CSWA CassyAdams@alsa-or.org or 800.681.9851 ext 100
Assistive Technology Services Coordinator
Amanda Mason, MS, CCC-SLP AmandaMason@alsa-or.org or 800.681.9851 ext 104
Care Services Coordinator
Susan Pennock, MSW, CSWA SusanPennock@alsa-or.org or 800.681.9851 ext 114
Regional Care Services - Central Oregon
Molly Denton, MollyDenton@alsa-or.org or 541-977-7502
Regional Care Services - Willamette Valley
Mary Rebar, MaryRebar@alsa-or.org or 541-990-1246
Regional Care Services - Southern Oregon
Leah Saturen, MSW LeahSaturen@alsa-or.org or 541-292-8775